[personal profile] flexibeast
i'm envious. And i'm frustrated.

i'm envious of people who are physically able to attend social events, or events that at least have a social component. i'm envious of people who, once at said events, aren't socially inept and can, with little or no effort, interact with other people. i'm envious of people for whom smalltalk comes easily, and intellectual discussion is exhausting, rather than the other way around, as it is for me. i'm envious of those people being able to physically meet and network with other people who share similar interests.

i'm also frustrated. Frustrated that, quite reasonably, the vast majority of people feel more 'connected' with someone they've merely spoken to for 15 minutes than someone they've been speaking to via emails over a couple of months. Frustrated that, less reasonably, people assume that if you don't attend an event that they are attending, that you're not interested in interacting with them at all, and, probably, that you're aloof or a snob. Frustrated that i have 'invisible' illnesses, so that people assume i'm a healthy young person who's simply being a lazy slacker. Frustrated, ultimately, that my health issues so often limit what i can do or where i can go.

Some of the above things i can change. Some i may be able to change. And some i can't change. The question is, which things fall into which category? i've been trying to figure this out for many years now, and i'm still not sure about what goes where . . . .
 

Date: 2005-12-29 08:45 (UTC)
From: [identity profile] not-in-denial.livejournal.com
I really, really empathize. And unfortunately I've no idea what to say or offer other than an "I understand" and some *hugs*. :/ ...*more hugs*

Date: 2005-12-29 20:04 (UTC)
From: [identity profile] soupychick.livejournal.com
u aren't really envious, i don't think... u wouldn't want to be someone else... just you doing what you wanna do, right?

Date: 2005-12-30 00:11 (UTC)
From: [identity profile] flexibeast.livejournal.com
Well, all of the stuff i mentioned severely curtails my ability to effectively do the activist work i feel so passionately about, and that i want to do . . . . so no, in the end, it means i'm not able to effectively do all the things i want to do.

Date: 2005-12-30 00:21 (UTC)
From: [identity profile] flexibeast.livejournal.com
Sorry, i just realised you may not have read my earlier entries, in which i talk about how i have CFS/ME . . . . that's why i usually can't attend events, because i'm too physically exhausted to do so. But CFS/ME is a condition that's not understood, and isn't given as much attention as other debilitating illnesses, so most people don't realise the limitations that it imposes on those who suffer from it.

Date: 2005-12-30 00:22 (UTC)
From: [identity profile] flexibeast.livejournal.com
Thanks, i know you do. :-) *returns many hugs*

Date: 2005-12-30 06:31 (UTC)
From: [identity profile] cheshire-bitten.livejournal.com
I like you and I do feel connected to you, I have not disabilities that stop me from meeting people, I still spend a lot of time not wanting to be around people and wishing that I could hide and run away.

I hope to meet you at some point and having had friends with CFS I know the implications; I visit them a lot rather than the other way around.

Date: 2005-12-31 02:27 (UTC)
From: [identity profile] flexibeast.livejournal.com
Thanks; in my experience, you're one of a rare breed. :-)

Date: 2005-12-31 14:36 (UTC)
From: [identity profile] sacred-harlot.livejournal.com
Aww Sweetie,

Not being a sufferer myself of this terrible and debilitating condition, I cannot empathise I can only sympathise, and offer lots of support, love and hugs!!! You are a most wonderful partner, and I Love you so very much!!!



Sacred Harlot xxx.

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